Tag: Glioblastoma

The last time I wrote I said I was exhausted and yet that was two weeks before the school holidays had even started. 6 weeks of no routine, cobbled childcare, constant attention demands and trying to desperately find FUN things to do so you don’t feel like you’re creatively, culturally or energetically starving your child.  […]

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6 weeks, 30 days, 28 different friends and family, 6 machine breakdowns, 1 Aessai blanket of love, 1 pair of personalised Love Specs, 1 Archie & Press badass postcard, 8 crystals, 2 necklaces, 1 bluetooth speaker and 1 warrior mask…. And with that my radiotherapy is over and out as quickly as it started. I […]

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I’ve only just realised that I haven’t written since my last post and whilst there have been a few individual thank yous I have largely tried to be really present (pun intended) during this festive period which unfortunately means, as well as the usual general chaos, I haven’t had time to reply to all the […]

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This morning (5.30am) I am writing to send out a bat signal, a Warrior cry, a call to the tribe.  This last week has, despite my absolute best soul-searching efforts been the hardest of the hardest. Every morning without fail I have woken up and faced it all again. And in these actual dark winter […]

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