Tag: Glioblastoma

3 years. I’ve been waiting, hoping, believing but also doubting whether I’d get to this day since almost the moment I was told I probably wouldn’t. In the cancer world the big milestone to reach is normally 5 years but for Glioblastoma that’s pretty unimaginable.  My MRI this week was again completely clear as it […]

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For the last 4 years when a new year is starting I have used Project Love’s brilliant end of year journal (www.loveprojectlove.com) to reflect on the past year, helping to realise what I want to achieve and creating the life I want to lead. This year a lot of people have said that they bet […]

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The last time I wrote I said I was exhausted and yet that was two weeks before the school holidays had even started. 6 weeks of no routine, cobbled childcare, constant attention demands and trying to desperately find FUN things to do so you don’t feel like you’re creatively, culturally or energetically starving your child.  […]

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6 weeks, 30 days, 28 different friends and family, 6 machine breakdowns, 1 Aessai blanket of love, 1 pair of personalised Love Specs, 1 Archie & Press badass postcard, 8 crystals, 2 necklaces, 1 bluetooth speaker and 1 warrior mask…. And with that my radiotherapy is over and out as quickly as it started. I […]

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I’ve only just realised that I haven’t written since my last post and whilst there have been a few individual thank yous I have largely tried to be really present (pun intended) during this festive period which unfortunately means, as well as the usual general chaos, I haven’t had time to reply to all the […]

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This morning (5.30am) I am writing to send out a bat signal, a Warrior cry, a call to the tribe.  This last week has, despite my absolute best soul-searching efforts been the hardest of the hardest. Every morning without fail I have woken up and faced it all again. And in these actual dark winter […]

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