Last night, just for a couple of hours, was the first time I was alone in the house during the stillness of the night. I had to literally boot my parents out the door with some heavy emotional blackmail of letting me be slightly independent and trusting that I would call at the slightest wiff […]

I thought it might be worth an update on Buttercup’s effects. I was finally told by the doctors a few days ago that my new world is most likely due to the tumour rather than the drugs or the seizures I had at the beginning as my ‘symptoms’ haven’t changed and I’m now off all […]

I saw my 2 step sons for the first time yesterday since all this has happened. They are 7 and 11 and were told bits and bobs since the very beginning although obviously there are certain elements they don’t need to know. So what do you say? So far I’d left it completely to Danny […]

Blimey. Buttercup is rather attention seeking. It is apparently over half the size of half my head and has likely been there for many many years. How crazy is that? Whilst we’d seen the scans in the last appointment we got more information with this new neurosurgeon (private although please no judgements or comments either […]

Wow, just wow. The comments, the messages, the posts, the texts, the calls, everything has been out of this world. Truly and utterly blown me away. I won’t lie and say I thought no one would read it but I never ever thought the response would be so kind, generous and interested. And I cannot […]

I’ve been semi awake since 3am. Not stressed and my mind has been racing yet again with all that’s happened and will be happening. Every morning I have an immense sense of what can be achieved. Nothing feels unachievable despite the fact that’s the complete opposite of what I was feeling before all this happened. […]

I guess this needs to be put down because let’s face it, it’s what most people want to ask. I had (to the best of our and my doctors knowledge) no symptoms. I got headaches but they were always from dehydration and any migraines were alcohol induced. For the last 10mths I couldn’t open my […]

I still don’t know why I’ve set this up but I just have an overwhelming urge to write everything down. It’s not for anyone in particular, there’s zero agenda, it’s definitely not for capitalising on anything and it’s not even to help anyone else. It’s just for me and maybe a tiny bit is to […]

It is 6am and I have just woken up, come downstairs to not wake anyone and registered a domain called www.bottlemeupbuttercup.com This morning I decided that that’s exactly what my tumour is called – Buttercup. I know that’s exactly the opposite of what everyone wants to call it and how they see it but to […]