Me and my Buttercup brain tumour
3 years. I’ve been waiting, hoping, believing but also doubting whether I’d get to this day since almost the moment I was told I probably wouldn’t. In the cancer world the big milestone to reach is normally 5 years but for Glioblastoma that’s pretty unimaginable. My MRI this week was again completely clear as it […]
Since I have started this blog and through word of mouth I am often asked privately to share what I have done medically and any knowledge I have on the best way to approach a new diagnosis of cancer. In addition to all the feelings trying to process the horrendous news that you or a […]
I have written a journal sporadically since I was a child. Aside for being an incredible therapy tool, I write because I find it fascinating reading back either many years later or sometimes just a few days. It’s your own personal history book which will make you reflect, laugh, cringe, reminisce but also read with […]
For the last 4 years when a new year is starting I have used Project Love’s brilliant end of year journal (www.loveprojectlove.com) to reflect on the past year, helping to realise what I want to achieve and creating the life I want to lead. This year a lot of people have said that they bet […]
I’ve been sitting on this for a month now, not trusting to say it out loud until it was confirmed and reconfirmed 2 more times and then trying to understand what that means. ‘No evidence of disease’. When I was first shown this written in my MRI radiographer’s report in October I didn’t know how […]
One year ago today I woke up like any other day. I got up, had breakfast with my family and got ready to leave the house. Nothing at all about that morning was unusual or would give any indication that in a few hours an odd sensation would suddenly come over me and that would […]
The last time I wrote I said I was exhausted and yet that was two weeks before the school holidays had even started. 6 weeks of no routine, cobbled childcare, constant attention demands and trying to desperately find FUN things to do so you don’t feel like you’re creatively, culturally or energetically starving your child. […]
Another month down and whilst still as intense this time instead of sickness it’s been jam packed with summer crazy season adventures squeezed into every last spare minute between treatment, medical logistics and scans. In the last 6 weeks alone I have been on a beautiful family holiday to Spain, had a weekend away with […]
Wow, well that’s been one heck of a month. A few days after the last time I wrote I was back in hospital after I couldn’t hold anything in or pretty much eat for 6 days. On day 5 we eventually called my hospital team and they made me go in, thankfully not in an […]
In what feels like a staged approach the last week has been a big one including getting the results of my first MRI since my chemotherapy and radiotherapy began in January this year and then the start of my 2nd phase of treatments. I was warned previously that the MRI results might be inconclusive because […]