Me and my Buttercup brain tumour
I’ve been sitting on this for a month now, not trusting to say it out loud until it was confirmed and reconfirmed 2 more times and then trying to understand what that means. ‘No evidence of disease’. When I was first shown this written in my MRI radiographer’s report in October I didn’t know how […]
One year ago today I woke up like any other day. I got up, had breakfast with my family and got ready to leave the house. Nothing at all about that morning was unusual or would give any indication that in a few hours an odd sensation would suddenly come over me and that would […]
The last time I wrote I said I was exhausted and yet that was two weeks before the school holidays had even started. 6 weeks of no routine, cobbled childcare, constant attention demands and trying to desperately find FUN things to do so you don’t feel like you’re creatively, culturally or energetically starving your child. […]
Another month down and whilst still as intense this time instead of sickness it’s been jam packed with summer crazy season adventures squeezed into every last spare minute between treatment, medical logistics and scans. In the last 6 weeks alone I have been on a beautiful family holiday to Spain, had a weekend away with […]
Wow, well that’s been one heck of a month. A few days after the last time I wrote I was back in hospital after I couldn’t hold anything in or pretty much eat for 6 days. On day 5 we eventually called my hospital team and they made me go in, thankfully not in an […]
In what feels like a staged approach the last week has been a big one including getting the results of my first MRI since my chemotherapy and radiotherapy began in January this year and then the start of my 2nd phase of treatments. I was warned previously that the MRI results might be inconclusive because […]
In previous posts I’ve touched on some new treatments I will be undergoing completely separately from what is available in the UK. I feel like now is the time to talk in more detail about the two biggest ones, one of which is only a week away and the other starts at the beginning of […]
Last night was hard and the text below is from a personal diary entry I wrote because this morning I feel very compelled to share not just the fun holiday snaps but the times when I feel nothing like the smile you see in case it helps anyone at all to see that no one […]
This isn’t going to be a long post because let’s face it who wants to be on their laptop when you’re on a white sandy beach in Mexico but I realised after a week of being here that I hadn’t actually updated the blog to say I’m ok and I finally made it! To say […]
When I’ve talked previously about it will forever be Life Before and Life After I think what’s happened over the last few days is a perfect example of what exactly what I mean. About a week ago, I started to get a typical winter stuffy nose, stuffy head and feeling a little more wiped out. […]